{"id":78666,"date":"2021-08-12T12:00:35","date_gmt":"2021-08-12T16:00:35","guid":{"rendered":"https:\/\/newsroom.carleton.ca\/?post_type=cu_story&#038;p=78666"},"modified":"2025-08-19T09:37:12","modified_gmt":"2025-08-19T13:37:12","slug":"long-term-care-after-covid-19","status":"publish","type":"cu_story","link":"https:\/\/carleton.ca\/news\/story\/long-term-care-after-covid-19\/","title":{"rendered":"Long-term care after the COVID-19 disaster: 3 promising ways to move forward"},"content":{"rendered":"\n<section class=\"w-screen px-6 cu-section cu-section--white ml-offset-center md:px-8 lg:px-14\">\n    <div class=\"space-y-6 cu-max-w-child-max  md:space-y-10 cu-prose-first-last\">\n\n        \n                    \n                    \n            \n    <div class=\"cu-wideimage relative flex items-center justify-center mx-auto px-8 overflow-hidden md:px-16 rounded-xl not-prose  my-6 md:my-12 first:mt-0 bg-opacity-50 bg-cover bg-cu-black-50 pt-24 pb-32 md:pt-28 md:pb-44 lg:pt-36 lg:pb-60 xl:pt-48 xl:pb-72\" style=\"background-image: url(https:\/\/carleton.ca\/news\/wp-content\/uploads\/sites\/162\/long-term-care-post-covid-19-1200w-1.jpg); background-position: 50% 50%;\">\n\n                    <div class=\"absolute top-0 w-full h-screen\" style=\"background-color:rgba(0,0,0,0.600);\"><\/div>\n        \n        <div class=\"relative z-[2] max-w-4xl w-full flex flex-col items-center gap-2 cu-wideimage-image cu-zero-first-last\">\n            <header class=\"mx-auto mb-6 text-center text-white cu-pageheader cu-component-updated cu-pageheader--center md:mb-12\">\n\n                                    <h1 class=\"cu-prose-first-last font-semibold mb-2 text-3xl md:text-4xl lg:text-5xl lg:leading-[3.5rem] cu-pageheader--center text-center mx-auto after:left-px\">\n                        Long-term care after the COVID-19 disaster: 3 promising ways to move forward\n                    <\/h1>\n                \n                            <\/header>\n        <\/div>\n\n                    <svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" class=\"absolute bottom-0 w-full z-[1]\" fill=\"none\" viewbox=\"0 0 1280 312\">\n                <path fill=\"#fff\" d=\"M26.412 315.608c-.602-.268-6.655-2.412-13.524-4.769a1943.84 1943.84 0 0 1-14.682-5.144l-2.276-.858v-5.358c0-4.876.086-5.358.773-5.09 1.674.643 21.38 5.84 34.646 9.109 14.682 3.59 28.935 6.858 45.936 10.449l9.874 2.089H57.322c-16.4 0-30.31-.16-30.91-.428ZM460.019 315.233c42.974-10.074 75.602-19.88 132.443-39.867 76.16-26.791 152.063-57.709 222.385-90.663 16.7-7.823 21.336-10.074 44.262-21.273 85.004-41.688 134.719-64.193 195.291-88.413 66.55-26.577 145.2-53.584 194.27-66.765C1258.5 5.626 1281.34 0 1282.24 0c.17 0 .34 27.596.34 61.3v61.299l-2.23.375c-84.7 13.718-165.93 35.955-310.736 84.931-46.494 15.753-65.427 22.076-96.166 32.15-9.102 3-24.814 8.198-34.989 11.574-107.543 35.954-153.008 50.422-196.626 62.639l-6.74 1.876-89.126-.054c-78.135-.054-88.782-.161-85.948-.857ZM729.628 312.875c33.229-10.985 69.248-23.523 127.506-44.207 118.705-42.223 164.596-57.709 217.446-73.302 2.62-.75 8.29-2.465 12.67-3.751 56.19-16.772 126.94-33.597 184.17-43.671 5.07-.91 9.66-1.768 10.22-1.875l.94-.161v170.236l-281.28-.054H719.968l9.66-3.215ZM246.864 313.411c-65.041-2.251-143.047-12.11-208.432-26.256-18.375-3.965-41.73-9.538-42.202-10.074-.171-.214-.257-21.38-.214-47.046l.129-46.618 6.654 3.697c57.313 32.043 118.491 56.531 197.699 79.143 40.313 11.521 83.459 18.058 138.669 21.059 15.584.857 65.685.857 81.14 0 33.744-1.876 61.306-4.93 88.396-9.806 6.396-1.126 11.634-1.983 11.722-1.929.255.375-20.48 7.769-30.999 11.038-28.592 8.948-59.288 15.646-91.873 20.147-26.36 3.59-50.015 5.627-78.35 6.698-15.584.59-55.209.59-72.339-.053Z\"><\/path>\n                <path fill=\"#fff\" d=\"M-3.066 295.067 32.06 304.1v9.033H-3.066v-18.066Z\"><\/path>\n            <\/svg>\n            <\/div>\n\n    \n\n    <\/div>\n<\/section>\n\n<p>This article is <a href=\"https:\/\/theconversation.com\/long-term-care-after-the-covid-19-disaster-3-promising-ways-to-move-forward-164682\" rel=\"noopener noreferrer\" target=\"_blank\">republished<\/a> from The Conversation under a Creative Commons licence. All photos provided by <a href=\"https:\/\/theconversation.com\" rel=\"noopener noreferrer\" target=\"_blank\">The Conversation<\/a> from various sources.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<p><\/p>\n\n\n\n<p>There is no question that COVID-19 has had devastating consequences in long-term care for residents, staff and families. Media provided <a href=\"https:\/\/www.cbc.ca\/news\/canada\/manitoba\/stuff-needs-to-change-family-of-man-who-died-of-covid-19-appalled-by-level-of-care-at-parkview-place-1.5777655\" target=\"_blank\" rel=\"noopener noreferrer\">heart-wrenching stories<\/a> about conditions in care homes and pictures of residents peering through windows. Numerous reports have been <a href=\"https:\/\/www.ic.gc.ca\/eic\/site\/063.nsf\/eng\/h_98049.html\" target=\"_blank\" rel=\"noopener noreferrer\">documenting the factors<\/a> that contributed to the disaster, identifying once again what needs to change.<\/p>\n\n\n\n<p>However, as is often the case in disasters, there are signs of light emerging from the devastation. Here we highlight three promising developments based on our current research project, \u201c<a href=\"https:\/\/reltc.apps01.yorku.ca\/\" target=\"_blank\" rel=\"noopener noreferrer\">COVID-19, Families and Long-Term Care<\/a>.\u201d<\/p>\n\n\n\n<h2 id=\"family-councils\" class=\"wp-block-heading\">Family councils<\/h2>\n\n\n\n<p>First, as we have learned through our interviews with family members, more people are participating in family councils and more family councils are becoming highly effective in shaping policies and practices. <\/p>\n\n\n\n<p>A family council is composed of family and friends of a long-term care home\u2019s residents. Although family councils are allowed in Ontario\u2019s <a href=\"https:\/\/www.ontario.ca\/laws\/statute\/07l08#BK74\" target=\"_blank\" rel=\"noopener noreferrer\">Long-Term Care Homes Act<\/a>, the groups are intended to be self-led and democratically run, and determine their own goals. Within their overall purpose of improving quality of life for residents, <a href=\"https:\/\/fco.ngo\" target=\"_blank\" rel=\"noopener noreferrer\">their roles can include education, peer support and pursuing positive changes in homes and in the long-term care system<\/a>. Whether there is a family council and how it operates varies with each home and is determined by it.<\/p>\n\n\n\n<p>In Ontario, family councils are included in the legislation governing long-term care but are not required. Certainly, family councils have long played a critical role. But not all homes have had active councils and not all councils have taken the kind of action that pandemic practices have spurred.<\/p>\n\n\n\n<p>During the pandemic:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><br><p>Cut off from daily life in care homes and limited in the impact they could have individually, more family members joined the councils. <\/p><br><\/li>\n\n\n\n<li><br><p>Frustrated by the poor communications from care homes, more councils became highly effective communicators.  <\/p><br><\/li>\n\n\n\n<li><br><p>Provoked by confusing government directives, councils more thoroughly investigated the directives in order to become critical sources of information for families and even sometimes for the management. <\/p><br><\/li>\n<\/ul>\n\n\n\n<p>More councils have furthered their efforts both in relation to the home and in relation to government, connecting through family council networks and sharing information across jurisdictions to broaden their advocacy work. At the same time, the pandemic has made more people in the general population <a href=\"https:\/\/www.ontariohealthcoalition.ca\/\" target=\"_blank\" rel=\"noopener noreferrer\">aware of conditions in long-term care and determined to demand change<\/a>.<\/p>\n\n\n\n<h2 id=\"essential-contributions\" class=\"wp-block-heading\">Essential contributions<\/h2>\n\n\n\n<p>Second, the prohibition against families entering care homes made their essential contributions visible. As we have long learned in our research, families \u2014 by which we often mean women \u2014 <a href=\"https:\/\/doi.org\/10.1177\/1049732317730568\" target=\"_blank\" rel=\"noopener noreferrer\">do much more than hug<\/a>. They prepare culturally appropriate food and activities, purchase supplies and clean clothes and assist in eating and in walking. They monitor, advocate and interpret, and they brush teeth and comb hair   \u2014 to name only some of the ways they fill the gaps in care.<\/p>\n\n\n\n<figure class=\"wp-block-image align-center zoomable\"><a href=\"https:\/\/images.theconversation.com\/files\/413650\/original\/file-20210728-19-1eodb2s.JPG?ixlib=rb-1.1.0&amp;q=45&amp;auto=format&amp;w=1000&amp;fit=clip\" target=\"_blank\" rel=\"noopener noreferrer\"><img decoding=\"async\" src=\"https:\/\/images.theconversation.com\/files\/413650\/original\/file-20210728-19-1eodb2s.JPG?ixlib=rb-1.1.0&amp;q=45&amp;auto=format&amp;w=754&amp;fit=clip\" alt=\"A smartphone in a woman's hands, showing a picture of a woman in a mask and a man in a wheelchair\"\/><\/a><figcaption class=\"wp-element-caption\">\n              <span class=\"caption\">Esther Hladkowicz holds an image of her and her father Heinz Ziebell taken during their first visit in eight months because of COVID-19 restrictions, in Ottawa in May 2021.<\/span><br>\n              <span class=\"attribution\"><span class=\"source\">THE CANADIAN PRESS\/Justin Tang<\/span><\/span><br>\n            <\/figcaption><\/figure>\n\n\n\n<p>For example, one woman who visited her aunt said: <\/p>\n\n\n<div class=\"not-prose cu-quote cu-component-spacing\">\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>\u201cI would wash her face. I would cut her hair, which she preferred I do rather than hiring somebody. And I would help her stay groomed. Her hands were often dirty, so I would soak her hands to get them cleaned up. I\u2019d help her clean her dentures, brush her teeth, brush her mouth really. And I would help her with calling to family.\u201d <\/p>\n<\/blockquote>\n<\/div>\n\n\n<p>She also cleaned her aunt\u2019s wheelchair, and cleaned up anything she noticed that didn\u2019t look good. She called staff\u2019s attention to her aunt\u2019s needs, such as her missing eyeglasses. And she would take her aunt outside.<\/p>\n\n\n<div class=\"not-prose cu-quote cu-component-spacing\">\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>\u201cI would take her outside, which is a big thing for me because they\u2019re not entitled to fresh air. I would take her outside as much as I could even if it was just a spin down to the sidewalk and back. And she loved actually being outside and smelling the air and seeing even the traffic go by. I mean, she didn\u2019t care what it was. It was just like being part of life.\u201d  <\/p>\n<\/blockquote>\n<\/div>\n\n\n<p>With family visits prohibited, none of these aspects of care were provided for her aunt in the wake of COVID-19.<\/p>\n\n\n\n<p>Although staff shortages were clearly critical during the pandemic, family absences exposed the extent to which <a href=\"https:\/\/muse.jhu.edu\/article\/662817\/pdf\" target=\"_blank\" rel=\"noopener noreferrer\">chronic staff shortages<\/a> before the pandemic have made homes dependent on relatives every day for a <a href=\"https:\/\/doi.org\/10.3138\/9781442687790\" target=\"_blank\" rel=\"noopener noreferrer\">wide range of care<\/a>.<\/p>\n\n\n\n<h2 id=\"essential-care\" class=\"wp-block-heading\">Essential care<\/h2>\n\n\n\n<p>Third, the prohibition against visitors, combined with the enforced isolation of residents in their rooms and the push for staff to focus on clinical care, highlighted the essential nature of both social care and of those services often dismissed as supplementary. These include food, clothing, housekeeping and laundry. <\/p>\n\n\n\n<p>After the Canadian Armed Forces deployed members to provide assistance in long-term care homes during the COVID-19 crisis, a report emphasized the absence of these essential services and the absence of vital social care. Specifically, it noted \u201c<a href=\"https:\/\/www.macleans.ca\/wp-content\/uploads\/2020\/05\/JTFC-Observations-in-LTCF-in-ON.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">not having witnessed any psychosocial support for these residents<\/a>,\u201d the lack of clean linen and lack of access to sufficient nutrition. <\/p>\n\n\n\n<figure class=\"wp-block-image align-center zoomable\"><a href=\"https:\/\/images.theconversation.com\/files\/413651\/original\/file-20210728-21-1nvbqew.jpg?ixlib=rb-1.1.0&amp;q=45&amp;auto=format&amp;w=1000&amp;fit=clip\" target=\"_blank\" rel=\"noopener noreferrer\"><img decoding=\"async\" src=\"https:\/\/images.theconversation.com\/files\/413651\/original\/file-20210728-21-1nvbqew.jpg?ixlib=rb-1.1.0&amp;q=45&amp;auto=format&amp;w=754&amp;fit=clip\" alt=\"\"\/><\/a><figcaption class=\"wp-element-caption\">\n              <span class=\"caption\">A man looks out the window at the Camilla Care Community Centre in Mississauga, Ont., overlooking crosses representing people who died during the COVID-19 pandemic.<\/span><br>\n              <span class=\"attribution\"><span class=\"source\">THE CANADIAN PRESS\/Nathan Denette<\/span><\/span><br>\n            <\/figcaption><\/figure>\n\n\n\n<p>The haunting pictures of residents in the windows and the <a href=\"https:\/\/www.cbc.ca\/news\/canada\/toronto\/ontario-investigating-two-long-term-care-homes-1.6026856\" target=\"_blank\" rel=\"noopener noreferrer\">reports of death from isolation<\/a> also speak to a lack of social care. Clinical care is undoubtedly necessary, but COVID-19 makes it obvious it is not sufficient for life.<\/p>\n\n\n\n<p>There is no question that we will have to work hard to make sure that this time the lessons learned from the pandemic do not get lost once again as the immediate crisis passes. This includes supporting families and family councils. It also means recognizing the full range of essential care.<\/p>\n\n\n\n<p>&#8212;<br>\n<a href=\"https:\/\/newsroom.carleton.ca\/\">Carleton Newsroom<\/a><\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/counter.theconversation.com\/content\/164682\/count.gif?distributor=republish-lightbox-basic\" alt=\"The Conversation\"\/><\/figure>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This article is republished from The Conversation under a Creative Commons licence. All photos provided by The Conversation from various sources. There is no question that COVID-19 has had devastating consequences in long-term care for residents, staff and families. Media provided heart-wrenching stories about conditions in care homes and pictures of residents peering through windows. [&hellip;]<\/p>\n","protected":false},"author":410,"featured_media":78667,"template":"","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"cu_story_type":[1623],"cu_story_tag":[],"class_list":["post-78666","cu_story","type-cu_story","status-publish","has-post-thumbnail","hentry","cu_story_type-expert-perspectives"],"acf":{"cu_post_thumbnail":false},"_links":{"self":[{"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/cu_story\/78666","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/cu_story"}],"about":[{"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/types\/cu_story"}],"author":[{"embeddable":true,"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/users\/410"}],"version-history":[{"count":2,"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/cu_story\/78666\/revisions"}],"predecessor-version":[{"id":78669,"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/cu_story\/78666\/revisions\/78669"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/media\/78667"}],"wp:attachment":[{"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/media?parent=78666"}],"wp:term":[{"taxonomy":"cu_story_type","embeddable":true,"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/cu_story_type?post=78666"},{"taxonomy":"cu_story_tag","embeddable":true,"href":"https:\/\/carleton.ca\/news\/wp-json\/wp\/v2\/cu_story_tag?post=78666"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}