{"id":10176,"date":"2026-01-04T17:10:46","date_gmt":"2026-01-04T22:10:46","guid":{"rendered":"https:\/\/carleton.ca\/panl\/?p=10176"},"modified":"2026-01-04T20:33:18","modified_gmt":"2026-01-05T01:33:18","slug":"should-people-disclose-their-disability-susan-hardie-explains","status":"publish","type":"post","link":"https:\/\/carleton.ca\/panl\/2026\/should-people-disclose-their-disability-susan-hardie-explains\/","title":{"rendered":"Should People Disclose Their Disability? Dr. Susan L. Hardie Explains"},"content":{"rendered":"<div id=\"attachment_10177\" style=\"width: 250px\" class=\"wp-caption alignright\"><img aria-describedby=\"caption-attachment-10177\" decoding=\"async\" loading=\"lazy\" class=\"wp-image-10177\" src=\"https:\/\/carleton.ca\/panl\/wp-content\/uploads\/SusanHardie400-300x315.png\" alt=\"Dr. Susan L. Hardie, a woman with glasses and short hair, smiles warmly at the camera.\" width=\"240\" height=\"252\" srcset=\"https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/SusanHardie400-300x315.png 300w, https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/SusanHardie400.png 400w\" sizes=\"(max-width: 240px) 100vw, 240px\" \/><p id=\"caption-attachment-10177\" class=\"wp-caption-text\">Dr. Susan L. Hardie.<\/p><\/div>\n<p><a href=\"https:\/\/www.eviance.ca\/team-and-board\" target=\"_blank\" rel=\"noopener\">Dr. Susan L. Hardie, PhD<\/a>, is the Executive Director of Winnipeg-based <a href=\"https:\/\/www.eviance.ca\/\" target=\"_blank\" rel=\"noopener\">Eviance<\/a>, which has worked for more than three decades in the cross-disability and mental health fields. She has been instrumental in establishing Eviance as a national organization that models an intersectional, human rights\u2013based and reflexive approach, champions meaningful engagement, and facilitates collaborations with persons with disabilities, disability communities and allies across diverse locations. This Q&amp;A with Dr. Hardie is part of the <em>PANL Perspectives<\/em> <a href=\"https:\/\/carleton.ca\/panl\/accessibility\/\" target=\"_blank\" rel=\"noopener\">\u201cMaking Canada Accessible\u201d series<\/a>.<\/p>\n<h2>Question: How does Eviance increase accessibility?<\/h2>\n<p><strong>Susan Lynn Hardie<\/strong>: Our Vision at <a href=\"https:\/\/www.eviance.ca\/\" target=\"_blank\" rel=\"noopener\">Eviance<\/a> is to realize an inclusive, equitable and accessible society that\u2019s sustainable for all \u2013 with accessibility being one of three high-level themes. We unpack accessibility discourses and make visible the historic and current roots of cross-disability movements \u2013 the roots of social exclusion and social, economic and political inequities and injustices, as well as collective systemic actions. Our Mission is to serve as a facilitator of knowledge-to-action, bringing people and knowledge together on cross-disability issues to affect behavioural and system-level change.<\/p>\n<p>Our high-level themes that will increase inclusion, equity and accessibility (IEA) in all realms of society are: (1) community-based projects; (2) co-creating with diverse disability networks; and (3) knowledge-to-action activities. Permeating the themes is an <a href=\"https:\/\/www.eviance.ca\/videos?pgid=lyhml8h1-8202ffd5-452b-48df-8edf-f42c1e749874\" target=\"_blank\" rel=\"noopener\">intersectional<\/a>, human rights and <a href=\"https:\/\/www.eviance.ca\/videos?pgid=lyhml8h1-e64ec464-8e64-4371-a2b5-b36ab7c7eeff\" target=\"_blank\" rel=\"noopener\">reflexive<\/a> (IHRR) approach in everything we do. We\u2019re an Organization of Persons with Disabilities, an organization of 80% staff and volunteers being persons with disabilities.<\/p>\n<div class=\"u-video-wrapper\"><iframe loading=\"lazy\" title=\"What is Intersectionality?\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/KOivvWQ3_Hs?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<h2>Question: How are the three themes related to accessibility?<\/h2>\n<p><strong>Susan Lynn Hardie<\/strong>: With community-based projects, the first of our three high-level themes, we hope that organizations working with Eviance will increase capacity to develop and embed processes, policies and practices aligned with an <a href=\"https:\/\/www.eviance.ca\/videos?pgid=lyhml8h1-8202ffd5-452b-48df-8edf-f42c1e749874\" target=\"_blank\" rel=\"noopener\">intersectional<\/a>, human rights and <a href=\"https:\/\/www.eviance.ca\/videos?pgid=lyhml8h1-e64ec464-8e64-4371-a2b5-b36ab7c7eeff\" target=\"_blank\" rel=\"noopener\">reflexive<\/a> (IHRR) approach. Ultimately, our projects and programs aim to enhance inclusion, equity and accessibility in a sustainable way and to significantly influence policy in Canada.<\/p>\n<p>With the second theme (co-creating with diverse disability networks), we work with allies, individuals and diverse disability communities to strengthen capacity development in IHRR. Essential skills include active listening, power analysis, systems thinking, consciousness raising, self-awareness and ethical leadership.<\/p>\n<p>It\u2019s our hope that the third theme, knowledge-to-action activities, will help individuals and diverse disability communities to build confidence in applying IHRR approaches in civil society. Ambitiously, we hope that individuals and diverse disability communities will increasingly inform ongoing work on the <a href=\"https:\/\/sdgs.un.org\/goals\" target=\"_blank\" rel=\"noopener\">Sustainable Development Goals 2030<\/a> and implement and monitor the <a href=\"https:\/\/social.desa.un.org\/issues\/disability\/crpd\/convention-on-the-rights-of-persons-with-disabilities-crpd\" target=\"_blank\" rel=\"noopener\">United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)<\/a> and other UN conventions and treaties. One of the greatest challenges we face is making the UNCRPD understandable as a strategic, system-change tool.<\/p>\n<p>Eviance embraces, at minimum, <a href=\"https:\/\/www.eviance.ca\/videos?pgid=lyhml8h1-9b0bad1a-be34-40b2-b276-fedaea30d95d\" target=\"_blank\" rel=\"noopener\">the social model of disability<\/a>, while continually aspiring to realize a human rights model whenever possible.<\/p>\n<div class=\"u-video-wrapper\"><iframe loading=\"lazy\" title=\"Models of Disability\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/o3gSqfSrTw4?start=17&#038;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<h2>Question: What programs does Eviance run with youth with diverse disabilities?<\/h2>\n<div id=\"attachment_10178\" style=\"width: 386px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.eviance.ca\/disabilityandclimate\" target=\"_blank\" rel=\"noopener\"><img aria-describedby=\"caption-attachment-10178\" decoding=\"async\" loading=\"lazy\" class=\"wp-image-10178 \" src=\"https:\/\/carleton.ca\/panl\/wp-content\/uploads\/ManInBlueJacketAtEviance500-300x314.png\" alt=\"A man with a very short hair and a blue winter jacket smiles at the camera.\" width=\"376\" height=\"394\" srcset=\"https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/ManInBlueJacketAtEviance500-300x314.png 300w, https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/ManInBlueJacketAtEviance500-400x418.png 400w, https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/ManInBlueJacketAtEviance500.png 500w\" sizes=\"(max-width: 376px) 100vw, 376px\" \/><\/a><p id=\"caption-attachment-10178\" class=\"wp-caption-text\">Eviance&#8217;s program, &#8220;Canadian Disability &amp; Climate Change Network and Strategy Project,&#8221; addresses the interaction between the SDGs and disability and climate change.<\/p><\/div>\n<p><strong>Susan Lynn Hardie<\/strong>: We operate <a href=\"https:\/\/www.eviance.ca\/ystar\" target=\"_blank\" rel=\"noopener\">Youth with Disabilities Strive to Accelerate Results (YStar)<\/a><u>.<\/u> While working with youth with disabilities, we became aware of the daily isolation they experience while navigating complex social, health care, education and employment systems. We also learned about the initiatives youth were co-creating to address issues important to them (e.g., mutual aid, climate action, just care and other systemic injustices). Our hope is that the YStar Fellowship is in itself an intervention that counters youth isolation by providing opportunities and resources for Fellows to engage in Eviance\u2019s learning opportunities and in self-directed activities that connect with individuals and initiatives in areas of interest \u2013 and thus, they\u2019re not \u201calone.\u201d<\/p>\n<p>As a leader within the cross-disability movement, I commit to working to remove systemic and behavioural barriers that prevent youth from being meaningfully engaged in federal processes. It\u2019s essential that we learn together how to respond effectively to ongoing requests for disability \u201crepresentation\u201d and \u201cconsultation\u201d &#8212; whether local, provincial, territorial, federal or international &#8212; so that these efforts reflect collective, meaningful, intergenerational strategic action with a shared vision.<\/p>\n<p>Another project is the &#8220;<a href=\"https:\/\/www.eviance.ca\/disabilityandclimate\" target=\"_blank\" rel=\"noopener\">Canadian Disability &amp; Climate Change Network and Strategy Project<\/a><u>,<\/u>\u201d which addresses the complex interaction between climate action and disability, with a specific focus on six of the United Nations\u2019 SDGs. Historically, <a href=\"https:\/\/www.cbc.ca\/news\/science\/what-on-earth-climate-action-people-with-disabilities-1.6576205\" target=\"_blank\" rel=\"noopener\">people with disabilities have been excluded from climate action spaces<\/a>, and our project is one means to address such exclusion. The project fosters knowledge exchange via a network, and supports ten disability and climate action initiatives &#8212; all with a vision of co-creating a \u201cNational Strategy on Disability and Climate Change.\u201d<\/p>\n<h2>Question: Do you think people should disclose their disabilities to employers?<\/h2>\n<p><strong>Susan Lynn Hardie<\/strong>: When I first became involved in grassroots organizing, drawing on my lived experiences of systemic violence, I was very na\u00efve in seeing the short-term impact of sharing a personal narrative of justice, courage and hope in overcoming systemic violence. My colleague and I, who co-presented for the first time, had no idea of the impact that presentation would have on my life &#8212; particularly on my health, well-being and work opportunities. More than once, my colleague witnessed the escalation of discrimination and the limits placed on opportunities because of that sharing. As they moved on in their career, the last thing my colleague said to me was, \u201cI am so sorry.\u201d<\/p>\n<p>My decision to disclose was what I now call a \u201cconstrained\u201d choice. When people are surviving and getting on their feet, it\u2019s not the time to invite them to share their personal narrative. If disclosure is invited, I argue that it\u2019s ethically essential to support individuals through an informed, decision-making process that includes awareness of self, power analysis (fiscal or positional power, or lack thereof), and understanding the short- and long-term impacts of the choice.<\/p>\n<blockquote><p>From my personal and professional journey with disclosure, I\u2019ve learned to emphasize the importance of being aware of one\u2019s power. I explore with individuals the short- and long-term impacts of disclosure, and I\u2019m honest with them: if they don\u2019t have access to fiscal or positional power, I encourage them to seriously consider not disclosing until these realities change. This encouragement is contrary to current practices in the psychosocial disability sector (i.e., mental health sector), which often encourages disclosure.<\/p><\/blockquote>\n<div id=\"attachment_10179\" style=\"width: 416px\" class=\"wp-caption alignright\"><img aria-describedby=\"caption-attachment-10179\" decoding=\"async\" loading=\"lazy\" class=\" wp-image-10179\" src=\"https:\/\/carleton.ca\/panl\/wp-content\/uploads\/What-is-Reflexivity500-300x302.png\" alt=\"\" width=\"406\" height=\"409\" srcset=\"https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/What-is-Reflexivity500-300x302.png 300w, https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/What-is-Reflexivity500-400x403.png 400w, https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/What-is-Reflexivity500-150x150.png 150w, https:\/\/carleton.ca\/panl\/wp-content\/uploads\/\/What-is-Reflexivity500.png 500w\" sizes=\"(max-width: 406px) 100vw, 406px\" \/><p id=\"caption-attachment-10179\" class=\"wp-caption-text\">&#8220;Reflexivity&#8221; is about connecting our personal biases and privilege with a larger picture, and taking actions that reflect the self-awareness and realizations. Eviance provides a video to explain the concept in more detail: https:\/\/www.eviance.ca\/videos.<\/p><\/div>\n<p>I do support the strategic \u201cuse of self\u201d to affect systemic change &#8212; but only if individuals with diverse disabilities have been supported through a quality <a href=\"https:\/\/www.eviance.ca\/videos?pgid=lyhml8h1-e64ec464-8e64-4371-a2b5-b36ab7c7eeff\" target=\"_blank\" rel=\"noopener\">reflexive process<\/a> that facilitates an informed choice. It is important to note that some people with visible disabilities may feel they have no choice. Yet, even then, I believe they can choose to disclose their lived experiences strategically to effect systemic change.<\/p>\n<p>The cross-disability movement has always been about \u201cinformed choice\u201d and \u201cinclusion\u201d, and these principles apply to disclosure and the sharing of one\u2019s narrative.<\/p>\n<blockquote><p>Early in my career, I came across the saying: \u201cA society will be judged by how it deals with its most vulnerable.\u201d At Eviance, our hope is that through our IHRR approach &#8212; and our collective vision of realizing an accessible, equitable and inclusive society &#8212; we can help to build a future that\u2019s sustainable for all.<\/p><\/blockquote>\n<p>Our vision is embraced within the cross-disability sector, yet I sense we still have work to do to ensure that all persons with disabilities, diversely-located and across lifespans, are valued and recognized as essential in society more broadly.<\/p>\n<p><em>Eviance is on <a href=\"https:\/\/www.linkedin.com\/company\/eviancecanada\/\" target=\"_blank\" rel=\"noopener\">LinkedIn<\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Dr. Susan L. Hardie, PhD, is the Executive Director of Winnipeg-based Eviance, which has worked for more than three decades in the cross-disability and mental health fields. She has been instrumental in establishing Eviance as a national organization that models an intersectional, human rights\u2013based and reflexive approach, champions meaningful engagement, and facilitates collaborations with persons [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_mi_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[3135,549,167],"tags":[3304,443,442,3136,3306,66,77,355,73,81,811,97,3299,393,1827,3303,1828,577,3305,3298,408,56,1671,52,98,985,90,426,1135,3307,1410,111,3300,291,2544,1279,1833,76,96,813,424,71,82,425,812,124,74,3275,75,84,72,2201,423,251,182,427,434,3301,3302,185,229,326,578,371,3309,83,475,341,814,616,444,171,3297,3296,893,3308,78,79,1039,3199,986],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v21.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Should People Disclose Their Disability? 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